Education and Training in Mental Retardation and Developmental Disabilities

VOLUME 38   NUMBER 4    DECEMBER 2003

 

 

 

 

 

Research to Practice in Cognitive Disabilities/Mental Retardation, Autism, and Related Disabilities

Abandoning the Myth of Mental Retardation

Written Language Profile of Children and Youth with Asperger Syndrome: From Research to Practice

Family Perceptions of Transitions in Early Intervention

Age of Majority, Transfer of Rights and Guardianship: Considerations for Families and Educators

Accountability in Collaboration: A Framework for Evaluation

Education for all in the North and the South: Teachers’ Attitudes Towards Inclusive Education in Finland and Zambia  

M.A.G.I.C. W.O.R.K.S (Motivating Activities Geared-to Instilling Confidence--- Wonderful Opportunities to Raise Kid’s Self-Esteem)

Using Assistive Technology Focus Groups with Families Across Cultures

Enhancing Appropriate Social Behaviors for Children with Autism in General Education Classrooms: An Analysis of Six Cases

Application of Computer Simulation to Teach ATM Access to Individuals with Intellectual Disabilities

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Abstracts

Research to Practice in Cognitive Disabilities/Mental Retardation, Autism, and Related Disabilities
Cindy Perras, Valerie Sharpe, Darlene E. Perner

Abstract: On February 12-14, 2003, the Council for Exceptional Children Division on Developmental Disabilities (DDD) sponsored its Eighth International Conference: Research to Practice in Cognitive Disabilities/Mental Retardation, Autism, and Related Disabilities. The conference was held at the Sheraton Poipu on Kauai. The DDD Board of Directors decided to devote this issue of Education and Training in Developmental Disabilities to conference papers. The conference brought together educators from school and college classrooms from all over the world. Through a joint program process with the Pacific Rim Conference, taking place in Honolulu, Hawaii earlier in the week, sessions were offered on a wide range of topics. Presenters were asked to submit papers based on their conference presentations. Papers submitted were reviewed by the Guest Editors who selected the papers for publication. We think the selection of papers represents an interesting assortment of topics and formats ranging from discussion papers to databased research to descriptions of classroom techniques.

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Abandoning the Myth of Mental Retardation
J. David Smith

Abstract: One of the great teachers I had during my doctoral studies at Teachers College, Columbia University was Professor Ignacy Goldberg. As great teachers often do, Dr. Goldberg engaged his students with stories from his own life. I remember clearly his accounts from early in his career of working in an institution for persons diagnosed as mentally retarded. He recalled that during his first days there an experienced staff member explained to him that there were actually three different populations of people in the institution, the "retarded retarded,” the "normal retarded,” and the "minimally gifted.” The retarded retarded needed constant care. The normal retarded and the minimally gifted often provided this help to them. The normal retarded were the mainstream population of the institution. They lived relatively independent lives within the culture of the institution. They were often given the most basic and unpleasant work to do (cleaning and caring for the retarded retarded). The minimally gifted made certain that things ran smoothly in the wards of the institution. They occupied the upper echelon of the residential society and were rewarded by the institution's staff for doing things the employees were actually paid to do. Their rewards included cigarettes, money, privileges and other favors. The quality of institutional life often depended on the abilities, sensibilities, and compassion of the minimally gifted. Dr. Goldberg discussed the degrading nature of the terms used to describe the institution's residents, particularly the sarcastic designation "minimally gifted.” The concept underlying the terms, however, he found to be valid. There were distinctly different groups of people in the institution, yet all of them were referred to as being the retarded. He used his story to question the monolith that mental retardation had become in the thinking of the public and in many professional circles.

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Written Language Profile of Children and Youth with Asperger Syndrome: From Research to Practice
Brenda Smith Myles, Abigail Huggins, Maleia Rome-Lake, Taku Hagiwara, Gena P. Barnhill, Deborah E. Griswold

Abstract: The current study investigated written language skills of children and youth with Asperger Syndrome (AS). Sixteen children and youth with AS and 16 neurotypical peers were compared on a standardized test of written language skills and legibility of handwriting. To investigate more detailed characteristics, informal analyses were also made for written samples from these standardized tests. In written language skills, significant differences were not found between standardized scores of both groups; however, in hand writing skills, the group of individuals with AS produced significantly less legible letters and words than the neurotypical group. Informal analyses of written samples further reveal that the group of children and youth with AS appear to be able write quantitatively similar to their neurotypical peers with using grammatical rules but had difficulty producing qualitative writing. Implications for translating research to practice in teaching writing skills for children and youth with AS are discussed.

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Family Perceptions of Transitions in Early Intervention
David L. Lovett and Kathryn A. Haring

Abstract:This article explores three broad themes about transitions that have emerged in a naturalistic study of experiences of families with young children with disabilities. Generalizations regarding early transitions include families going through a birth crisis have difficulty understanding all the information they are provided. Not only is their role unclear (“Should I stay with the mother or follow the baby?”), familiarity with medical technology is typically limited. In a crisis state the mind may take in nothing more once it accepts the concept of an extremely critical or life threatening condition. In addition, mothers who have had emergency Cesarean sections are struggling through pain medication and their own trauma. Secondly, parents may not feel comfortable assessing their abilities to care for their children as they transition from the hospital to home. Finally, the transition from home-based early intervention to center-based preschool can cause anxiety for parents. An IEP meeting may be the first introduction into the world of special education. Formality of public schooling involves new learning such as definitions, categories, and placement decisions.

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Age of Majority, Transfer of Rights and Guardianship: Considerations for Families and Educators
Dorothy Squatrito Millar 

Abstract: Under IDEA, when youths reach the age of majority they become responsible for their educational program, unless they are determined to be incompetent. When considering student competence, the issue of guardianship is often raised. Guardianship is inconsistent with the recent emphasis on self-determination. This study examined guardianship practices as they relate to young adults who have developmental disabilities. Review of 221 court files found that (a) disability label, limited ability to make decisions, and youth reaching the age of majority were main reasons why petitions were filed; (b) evidence used to “prove” incompetence was unclear; (c) ward's “conditions” remained constant following the guardian appointment; and (d) guardianship did not necessarily resolve the areas of concern. Guardianship is a complex issue in need of further investigation.

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Accountability in Collaboration: A Framework for Evaluation
Jack Hourcade, Phil Parette, Holly Anderson

Abstract: Accountability is perhaps the most significant issue facing educators today. How can school professionals document that their work results in significant positive outcomes? This issue is especially critical to the many special and general educators moving into collaborative partnerships, given the dramatic shifts in their professional roles inherent in this move. A 2 x 2 "Collaboration Evaluation Matrix" outlines two basic types of information (objective and subjective) and two basic dimensions of any program (processes and outcomes) that might be considered in evaluation of collaboration. Multiple data sources enhance validity and utility of these evaluation efforts.

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Education for all in the North and the South: Teachers’ Attitudes Towards Inclusive Education in Finland and Zambia 
Sakari Moberg

Abstract: A survey assessed attitudes of 1636 Zambian and Finnish teachers towards inclusive education and consequently the perceptions of appropriate educational environment for children with different disabilities. On the whole, attitudes varied but were quite critical. Structure of the attitudes was similar in both countries; factor analyses extracted four attitude dimensions: 1) social justice, 2) meeting special needs of students with severe disabilities, 3) teachers’ competence, and 4) quality of education for non-disabled students. On inclusion in general, the Finnish ordinary teachers were the most critical group and the Finnish special education teachers the most optimistic. Most respondents felt that inclusive education enhances social justice. However, pursuit of inclusion in practice, especially the guarantee of good and effective education for all, was seen as problematic. Compared to Finnish respondents, the Zambian respondents preferred a more segregated educational environment for children with different disabilities. Type and severity of disability affected the preferred educational setting and there were clear differences in this regard between respondents from the two countries. Findings support the idea that teachers’ attitudes towards inclusion are important in developing inclusive school systems and that inclusive education is best understood as a multi-dimensional concept, which, at the practical level, is highly context-dependent.

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M.A.G.I.C. W.O.R.K.S (Motivating Activities Geared-to Instilling Confidence--- Wonderful Opportunities to Raise Kid’s Self-Esteem)
Dan Ezell and Colleen E. Klein-Ezell

Abstract: This study investigates use of magic tricks to increase self-esteem and self-confidence of children with disabilities. Twenty-six children with various disabilities at both elementary and secondary levels volunteered for the study. Participants were taught various magic tricks and were given weeks of practice time to perfect their presentation prior to performing for others. Pre- and post-test measures of self-esteem and self-confidence were determined using the Self-Image domain from the Self-Confidence dimension on the Student Self-Concept Scale. Overall results indicate that a statistical increase in self-esteem and self-confidence was noted for the entire group at the end of the study. Significance of results and their implications are discussed.

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Using Assistive Technology Focus Groups with Families Across Cultures
Phil Parette, Mary Blake Huer, Jack J. Hourcade

Abstract: While numerous approaches exist to gather information from families having cultural and linguistically diverse backgrounds and who have children with developmental disabilities, the use of assistive technology (AT) focus groups holds great promise for professionals. This article provides an overview of a process that can be implemented in school settings by professionals who desire to understand the unique AT needs of families with cultural and linguistically diverse backgrounds. Specifically, a four-phase strategy is presented for collecting information from families regarding their perceptions of school professionals, appropriateness of their child's interventions, and other important attitudes that families might have toward various AT-related activities in which their child is a participant. Emphasis is placed on the right person asking the right questions in the right way to the right persons at the right time and place.

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Enhancing Appropriate Social Behaviors for Children with Autism in General Education Classrooms: An Analysis of Six Cases
Nancy Kueifen Yang, James L. Schaller, Tzu-Ai Huang, Meei Huey Wang and Shu-Fei Tsai

Abstract: This study compares generalized effects of a social-emotional skills training for girls and boys with autism in resource rooms on promoting positive social behaviors in general education classrooms in Taiwan. A single subject design was used to compare outcomes for 2 girls and 2 boys with autism in the experimental group with 2 boys with autism in the control group. Results of regression analyses revealed that all 4 participants in the experimental group significantly increased frequencies of positive social behaviors over time, while the two control participants did not demonstrate trends in the data. After adjusting for trends, the training had a medium effect size for 2 participants and a small effect size for 2 participants in the experimental group. This training was developed in response to educational services in Taiwan; suggestions are provided for development of interventions for children with autism that fit within general education classrooms.

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Application of Computer Simulation to Teach ATM Access to Individuals with Intellectual Disabilities
Daniel K. Davies and Steven E. Stock, Michael L. Wehmeyer

Abstract: This study investigates use of computer simulation for teaching ATM use to adults with intellectual disabilities. ATM-SIM is a computer-based trainer used for teaching individuals with intellectual disabilities how to use an automated teller machine (ATM) to access their personal bank accounts. In the pilot evaluation, a prototype system was developed and used to train nine adults with intellectual disabilities how to use a local ATM. Participants were pre-tested on their ability to use an ATM and then were trained using the ATM-SIM prototype. After a brief training period, participants were again tested on their capacity to operate the actual ATM. Results demonstrate preliminary evidence that computer simulation can be used effectively to teach a specific independent living skill to adults with mental retardation. Participants required significantly fewer help prompts and made fewer errors when operating the real ATM after ATM-SIM training. Potential for electronic and information technologies to promote community inclusion was discussed.

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